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Results 1 to 20 of 20
  1. #1

    pag 21 ko baka hindi na ako makalakad. paano na?

    I just wanna share this to you guys, I'm 19yrs.old and going to be 20 this September, sabi ng Doctor ko nung bata pa ako, baka mag-wheelchair na ako at hindi na makalakad pa pagsapit ng 21yrs.old sa 2013, tapos march 2014, ay ang panahon na maaaring makuha ko na ang college diploma at matapo ang kursong masscom,

    natatakot ako at lagi na tong bumabagabag sa isipan ko lalo pa't papalapit na ng papalapit ang panahon na maging 21 na ako, dahil ito sa sakit ko sa muscles, na tinatawag na "Muscular Dystrophy".

    maswerte ako kahit papano, dahil at the age of 19, nakakalakad pa rin ako, dahil usually mga patients sa sakit na ito, age 12 pa lang naka-wheelchair at cannot live without oxygen,... marami rin namamatay dahil dito dahil sa paghina ng mga heart and lungs muscles ay bumibigay ang katawan,

    sa ngayon, nakakaramdam na rin ako ng pakonti-konti, nahihirapan na ako huminga, minsan nahirapan na rin ako magbalanse sa paglalakad, madalas na rin nangangalay yung mga binti ko, masakit. namamanhid.

    ayoko kaso manghina ehh,... hindi ko pa natutulungan yung mama ko, hindi ko pa natutupad pangarap ko makapag-work sa isang tv station like GMA or ABS-CBN, at gusto ko pa talaga matulungan ang pamilya ko

    NATATAKOT AKO.... SOBRA....

  2. #2
    Live long and prosper Meanie!!'s Avatar
    Join Date
    May 2007
    Location
    Banshee
    Sali ka kaya sa PBB? lol jk

    Seriously, bro, yung work na pwede mong makuha dahil sa curso mo hindi naman yata kailngang mobile ka masyado. Just do your best, taasan mo pa grade mo then problemahin mo na yung problema pag nandyan na

    Meron nga dati yung UP grad ba yun na bulag pero topnotcher. Gamitin mo yang meron ka as fuel para maging pinaka-magaling.

  3. #3
    madami naman naka wheelchair na may makabuluhan pa din naitutulong sa lipunan. cheer up, meron jan nakakalakad, nakakatakbo pero sinasayang ang buhay.

    I read this article recently about a show called Push Girls, sobrang inspiring sila.



    http://www.dailymail.co.uk/femail/ar...lity-show.html

  4. #4
    you may work as a freelance writer or editor lalo na sa mga websites.. kahit nasa bahay ka lang at nakaupo...

  5. #5
    Quote Originally Posted by Meanie!! View Post
    Sali ka kaya sa PBB? lol jk

    Seriously, bro, yung work na pwede mong makuha dahil sa curso mo hindi naman yata kailngang mobile ka masyado. Just do your best, taasan mo pa grade mo then problemahin mo na yung problema pag nandyan na

    Meron nga dati yung UP grad ba yun na bulag pero topnotcher. Gamitin mo yang meron ka as fuel para maging pinaka-magaling.

    naisip ko na yan actually sasali ako sa PBB. lol. nagsesend na din ako ng story sa Wish Ko lang, baka sakaling mapansin ang kwento ng buhay ko,

    opo bro. salamat. hehe. dalawang taon na lang. magtatapos na ako sa kolehiyo.

  6. #6
    Your Vowel-Mangling Inday
    Join Date
    May 2012
    Location
    Retirement Home
    Maganda yaan! Writer, editor, SEO optimizer, o kaya graphic artist! You like writing ba at magaling ka sa photoshop? Actually gusto ko imungkahe sa iyo na kung mangangarap ka rin lang, taas-taasan mu na! Get published! Konte lang kase ang mga napupunta sa writing at journalism field na kayang mag-generate ng malakeng revenue sa pagsulat ng gusto nila. Most of these workers are forced to write whatever the boss orders them to. They're compelled to like it na lang. Although masaya pero kaawa den dahel yung iba passion talaga nila ang pagsulat pero parang slave ang dateng. Yung iba erotics ang specialties ng company eh. Malibug ba you?

  7. #7
    Two words to inspire you: STEPHEN HAWKING.

    --
    my_2_cents

  8. #8
    purplehead- salamat. babasahin ko po yung link. thanks

    kingofdex- sana nga hehe... pero sa kahit anong trabaho basta related sa MEDIA, gusto ko talaga makapag-lingkod sa mundo ng media.

  9. #9
    Quote Originally Posted by Vowel_Kilmer View Post
    Maganda yaan! Writer, editor, SEO optimizer, o kaya graphic artist! You like writing ba at magaling ka sa photoshop? Actually gusto ko imungkahe sa iyo na kung mangangarap ka rin lang, taas-taasan mu na! Get published! Konte lang kase ang mga napupunta sa writing at journalism field na kayang mag-generate ng malakeng revenue sa pagsulat ng gusto nila. Most of these workers are forced to write whatever the boss orders them to. They're compelled to like it na lang. Although masaya pero kaawa den dahel yung iba passion talaga nila ang pagsulat pero parang slave ang dateng. Yung iba erotics ang specialties ng company eh. Malibug ba you?
    kung sa writing, kaya ko pa, at magagawa ko, hilig ko din aman pagsusulat since elementary, hindi nga lang ako yung type na super active na ginagawang hobby ang writing

    malibug ba dung? hehe. direchahang "oo naman", hehe, based on experiences mga story hehe

  10. #10
    Your Vowel-Mangling Inday
    Join Date
    May 2012
    Location
    Retirement Home
    Malibug you? Ah ok. Hanap ka muna sana ng makaka-EB mo dito sa PEx bago ka ma-paralyse ng tuluyan para maka-score ka kahit peck on the cheek man lang. Kung swertehen ka baka maging tapek on the butt cheek yan.

  11. #11
    Quote Originally Posted by my_2_cents View Post
    Two words to inspire you: STEPHEN HAWKING.

    --
    my_2_cents
    thank you for that

  12. #12
    Quote Originally Posted by Vowel_Kilmer View Post
    Malibug you? Ah ok. Hanap ka muna sana ng makaka-EB mo dito sa PEx bago ka ma-paralyse ng tuluyan para maka-score ka kahit peck on the cheek man lang. Kung swertehen ka baka maging tapek on the butt cheek yan.
    haha may partner naman ako pare. hehe. ok aman hehe. first time ko mag-F ehh. ang hirap. kapagod. haha.

  13. #13
    Magiging impotent ka din ba pag 21 mo? tsk tsk

  14. #14
    Your Personal Jesus F-A Soldier's Avatar
    Join Date
    Apr 2005
    Location
    Schleep Mode
    Twenty years ago the science of medicine was 50 years ago. LOL. You take prednisone/steroids? It's hard to make an accurate prognosis given 10+, your doctor was probably using data at that time (which was the mean avg. of what expected of typical patients with the same disease---but not all patients are the same).

    You should just be happy and grateful. Most people (including me) take basic abilities for granted.

  15. #15
    Quote Originally Posted by yiepaks View Post
    I just wanna share this to you guys, I'm 19yrs.old and going to be 20 this September, sabi ng Doctor ko nung bata pa ako, baka mag-wheelchair na ako at hindi na makalakad pa pagsapit ng 21yrs.old sa 2013, tapos march 2014, ay ang panahon na maaaring makuha ko na ang college diploma at matapo ang kursong masscom,

    natatakot ako at lagi na tong bumabagabag sa isipan ko lalo pa't papalapit na ng papalapit ang panahon na maging 21 na ako, dahil ito sa sakit ko sa muscles, na tinatawag na "Muscular Dystrophy".

    maswerte ako kahit papano, dahil at the age of 19, nakakalakad pa rin ako, dahil usually mga patients sa sakit na ito, age 12 pa lang naka-wheelchair at cannot live without oxygen,... marami rin namamatay dahil dito dahil sa paghina ng mga heart and lungs muscles ay bumibigay ang katawan,

    sa ngayon, nakakaramdam na rin ako ng pakonti-konti, nahihirapan na ako huminga, minsan nahirapan na rin ako magbalanse sa paglalakad, madalas na rin nangangalay yung mga binti ko, masakit. namamanhid.

    ayoko kaso manghina ehh,... hindi ko pa natutulungan yung mama ko, hindi ko pa natutupad pangarap ko makapag-work sa isang tv station like GMA or ABS-CBN, at gusto ko pa talaga matulungan ang pamilya ko

    NATATAKOT AKO.... SOBRA....
    hi first of all i advise you to undergo physical and occupational therapy treatment. when i was an intern, i handled a lot of patients with different types of muscular dystrophy. some of them, by 12 y/o naka wheelchair na, depende rin yun kung anu klase muscular dystrophy. nasabi ba ng doctor mo kung anu klase muscular dystrophy yan? duchenne? beckers? limb girdle? emery dreifuss?

  16. #16
    Bummed Medical Student paul_theking's Avatar
    Join Date
    Dec 2008
    Location
    in your beeswax
    ^feeling ko beckers... 21 y.o na eh hehehe

    TS, i would suggest you ask your doctor on what to do, what measures to take to alleviate or minimize signs and symptoms of your condition

    Good Luck and Think Positive!

  17. #17
    Quote Originally Posted by colorado View Post
    hi first of all i advise you to undergo physical and occupational therapy treatment. when i was an intern, i handled a lot of patients with different types of muscular dystrophy. some of them, by 12 y/o naka wheelchair na, depende rin yun kung anu klase muscular dystrophy. nasabi ba ng doctor mo kung anu klase muscular dystrophy yan? duchenne? beckers? limb girdle? emery dreifuss?
    I'm glad na may isang nag-comment na may alam about sa kaso ng sakit ko, alam ko mas maiitindihan mo yung kondisyon ko anyway

    yun nga problema ko eh, nakalagay sa medical certificate ko, DUCHENNE., kaso bakit ganun, di ba mas severe ang duchenne?

    pero bakit kahit papano, malakas pa rin ako at 19, compare sa isang 12yrs.old na patient,

    may kutob ako na BECKERS ang meron ako, hindi duchenne

    sa ngayon po, BUmalik ako sa aking PHYSICAL THERAPHY, at nakakatulong din po yung mga galaan, tulad ng paglakad lakad sa buong SM MALL OF ASIA, kahit masakit at nakakapagod. NA-EEXERCISE yung mga binti ko,

  18. #18
    Quote Originally Posted by Mustaine View Post
    Magiging impotent ka din ba pag 21 mo? tsk tsk

    hindi naman siguro, hehe. tanggap naman ako ng partner ko. at alam ko alam na niya kung paano ako paligayahin ang sexlife ko. hehe, mas problema ko lang talaga paano ko magwowork ayun.

    gusto ko rin mapag-aral mga magiging pamangkin ko in the future. hehe. kahit wala pakong pamangkin.

  19. #19
    Quote Originally Posted by F-A Soldier View Post
    Twenty years ago the science of medicine was 50 years ago. LOL. You take prednisone/steroids? It's hard to make an accurate prognosis given 10+, your doctor was probably using data at that time (which was the mean avg. of what expected of typical patients with the same disease---but not all patients are the same).

    You should just be happy and grateful. Most people (including me) take basic abilities for granted.

    salamat po ng marami tsong.

  20. #20
    Quote Originally Posted by paul_theking View Post
    ^feeling ko beckers... 21 y.o na eh hehehe

    TS, i would suggest you ask your doctor on what to do, what measures to take to alleviate or minimize signs and symptoms of your condition

    Good Luck and Think Positive!
    salamat. naghahanap ako ng tyempo, hehe... dapat kasi magpapa-check up na ako dati, kaso nag-back out ako, hindi ko kinaya kasi yung mga negatives na narinig ko sa kuya ko at sa mama ko, ang sakit lang pakinggan mga ganung salita,

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